HOH Ladies - Tilted Forum Project Discussion Community

AliciaKostic · 01-17-2005, 08:37 AM

Heallo,
I am Alicia, 18, from Stanford, CA. II am HOH (Hard-Of-Hearing), due to chemo-therapy I had five years ago. My hearing los is mild, but still I wear pair of ITE (Full Shell) hearing aids. I already seen few HOH ladies here, but I am interested how many of us there are her. If there are enough, maybe we can make separate forum for us?
Alicia

amonkie · 01-17-2005, 09:02 AM

Hi there! I'm sure there are a few more besides you and I, but no where near enough to make a seperate forum. Still feel free to post your thoughts and ideas in this forum - it's here for ALL ladies, and I'm sure you'll still get discussion. Welcome!

AliciaKostic · 01-17-2005, 07:56 PM

Quote:

Originally Posted by amonkie

Hi there! I'm sure there are a few more besides you and I, but no where near enough to make a seperate forum. Still feel free to post your thoughts and ideas in this forum - it's here for ALL ladies, and I'm sure you'll still get discussion. Welcome!

My hearing loss is mild (about 35-40 db) at low-tones, up to 1500-2000 Hz, but goes to moderate (about 60-65) at hig-tones (4000-8000). My hearing loss isd mostly innfluenced by chemo-therapy I had 5 years ago, but I'm wondering why it is so high at high-tones? I heard that lot of young generation, teenagers and in early 20-s, are suffering "noise-induced hearing loss", at high-tones only, due to lod music listening. Somewhere I read that some 17% of students has that sort of HOH in one or both ears, but less than half of them are wearing HA's. So, maybe my hearing loss is partially influenced by the same? What about yours?
My first HA was oticon BTE (analog, don't remember model), than I got pair of digital Oticon BTE's (Oticon Ergo) and finally, last year pair of "full shell" ITE (Bernafone SmilePlus) - those you can see in the picture in my profile. What type do you wear?
Alicia

amonkie · 01-17-2005, 08:23 PM

Well, the nerves in your ear are much more sensitive at higher frequencies, and that's part of the reason for the higher damage levels. I lost my hearing from spinal meningitis as a baby 20 years ago, and have been wearing a BTE in my right ear (completely deaf in my left) since then. The ITE aren't powerful enough for me moderate-severe loss, but I'm loving my digital Phonak.

fallenangel · 01-18-2005, 07:17 AM

I'm not HOH, but I do have an auditory problem.

It's called Central Auditory Processing Deficit. I've been having problems with it for about three years now, but only in the last year and a half has it become problematic. It's normally found in younger people, so i'm a bit of a late bloomer (and i didn't actually notice until later like i said). If you put your hands over your ears and try talking, you'll notice it sounds muffled and you have trouble distinguishing some words. I have that when there's more than one noise in the same range occuring around me.

Really fuzzy explanation and not very in deapth but i don't want to bore anyone with the details. PM me if you're really interested, or just google CAPD.

No cure, and a hearing aid won't help. Only this special training (think physiotherapy for your auditory nerves) is HELLA expensive, not covered under medical, and will only provide a bit of ease when dealing with this.

01-17-2005, 08:37 AM	#1 (permalink)
AliciaKostic Upright Location: Permanently in Stanford, ca, but in the moment in Campus at UCLA	HOH Ladies Heallo, I am Alicia, 18, from Stanford, CA. II am HOH (Hard-Of-Hearing), due to chemo-therapy I had five years ago. My hearing los is mild, but still I wear pair of ITE (Full Shell) hearing aids. I already seen few HOH ladies here, but I am interested how many of us there are her. If there are enough, maybe we can make separate forum for us? Alicia

01-17-2005, 09:02 AM	#2 (permalink)
amonkie Drifting Administrator Location: Windy City	Hi there! I'm sure there are a few more besides you and I, but no where near enough to make a seperate forum. Still feel free to post your thoughts and ideas in this forum - it's here for ALL ladies, and I'm sure you'll still get discussion. Welcome! __________________ Calling from deep in the heart, from where the eyes can't see and the ears can't hear, from where the mountain trails end and only love can go... ~~~ Three Rivers Hare Krishna

01-17-2005, 08:23 PM	#4 (permalink)
amonkie Drifting Administrator Location: Windy City	Well, the nerves in your ear are much more sensitive at higher frequencies, and that's part of the reason for the higher damage levels. I lost my hearing from spinal meningitis as a baby 20 years ago, and have been wearing a BTE in my right ear (completely deaf in my left) since then. The ITE aren't powerful enough for me moderate-severe loss, but I'm loving my digital Phonak. __________________ Calling from deep in the heart, from where the eyes can't see and the ears can't hear, from where the mountain trails end and only love can go... ~~~ Three Rivers Hare Krishna

01-18-2005, 07:17 AM	#5 (permalink)
fallenangel soaring Location: near the water	I'm not HOH, but I do have an auditory problem. It's called Central Auditory Processing Deficit. I've been having problems with it for about three years now, but only in the last year and a half has it become problematic. It's normally found in younger people, so i'm a bit of a late bloomer (and i didn't actually notice until later like i said). If you put your hands over your ears and try talking, you'll notice it sounds muffled and you have trouble distinguishing some words. I have that when there's more than one noise in the same range occuring around me. Really fuzzy explanation and not very in deapth but i don't want to bore anyone with the details. PM me if you're really interested, or just google CAPD. No cure, and a hearing aid won't help. Only this special training (think physiotherapy for your auditory nerves) is HELLA expensive, not covered under medical, and will only provide a bit of ease when dealing with this. __________________ all I wanna do is - give the best of me to you