Living close to Grand Rapids, I'm surprised I haven't heard this.
I agree with the parents...
My cousin is going through a similar situation but she's still holding on....Her little boy was born with a condition that I think is called MINX. He wasn't supposed to live past 6 months. He'll be 2 years in November. Right now he's in the hospital and the outlook isn't good. I understand her holding on to hope like she is but I don't think I could do it.. Another sad thing is they have another little boy (not even a year older) that's basically living with his grandmother so that his mom can stay at the hospital 24/7 with the baby..She has been staying with the baby less and less though....My guess is to wean herself, in a way, off of him....(does that make sense?)
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