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If the prognosis was better than 50%, I would agree with them forcing the surgery, although they likely wouldn't need to. Either way, odds are the child is going to die.
I would probably go with the surgery, but you don't really know untill its happening to you.
Alls I know for sure is , if its my child, I believe I have not only the right, but the responsibility to decide what is in their best interest, not the state.
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We all have wings, some of us just don't know why.
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