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Originally Posted by Cyborg Ninja
The only ones that matter out of my list are the top 3. The rest are secondary.
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If those are the ones that matter to you, then why even worry about the others? I mean, clearly they do impact your life, but outside the direct impact they have on you, I would try not to think about them too much. If you keep thinking about yourself as a sick person, it's going to be harder to find ways to help yourself get better.
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Originally Posted by Cyborg Ninja
My syrinx cannot be treated surgically, and I wouldn't call eventually becoming crippled or worse "minor." Reading one article on something you had previously never heard of doesn't put you in a good position to suggest treatment options.
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You're right, I'm not an expert regarding treatment options, which is why I suggested that
you need to explore as many options as possible. Why is your syrinx inoperable? Have you had a second opinion? Maybe another neurosurgeon will be able to offer something more.
I don't recall anyone saying, at any point, that syringomyelia was a minor condition.
As a point of interest, I had a friend in high school who suffered from syringomyelia. While this in no way makes me an expert on the subject, I'm basing my opinions on my experience there. It was helpful for me then to compare and contrast her condition with mine and it was my understanding at that point that if it continued to grow a syrinx would necessitate draining and possibly the use of a shunt. I mention this now, lest you continue to think that my uneducated opinion on your obscure condition is based on reading one article.
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Originally Posted by Cyborg Ninja
Also, I am not complaining about employers not wanting to hire me, but I am looking for options to survive in the workplace.
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And the answer has been provided. The only real way to survive when suffering from chronic illness is to have documentation coming out your ass. If these conditions affect your attendance and/or performance, you need to prove to your employer that these problems really do exist and exactly how they affect you. Of course, if you live in an at-will state and don't have a contract, there's only so much you can do. I know it's a crappy answer, but it's a crappy situation. I'd be lying to you if I told you that employers are always going to be understanding and supportive. If you want to continue with gainful employment, you'll occasionally have to get in their faces a bit.
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Originally Posted by Cyborg Ninja
Anyway, this topic should have never been shifted in a way that just became me having to defend myself. That was not what this topic was about but sadly some people did not interpret it correctly.
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So, what was this topic about? You're the one who's gotten defensive, my man. The rest of us have tried to offer helpful suggestions and comparative experiences. You're not alone; there are people who've gone through similar experiences and some of them are here. We'll do our best to help you, but only if you let us.