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Originally Posted by Martian
I didn't miss the syringomyelia, I just assumed it was related to the scoliosis. And anyway, it doesn't change what I said. There will be times when you'll want to sit around and mope, but self-pity is destructive. You have to always be working to improve your condition.
Out of curiosity, what treatment options have you considered? Its my understanding that syringomyelia has to be treated surgically, but Crohn's and Grave's can both me managed medically and scoliosis can be treated orthopaedically. What options have you tried or considered? What other options do you have? All four can also be treated suirgically; have you looked into the various procedures?
Workplaces and/or school will not be understanding. This is not their illness and it's not their problem. Look at it from the other side; if you're a manager and you have an employee who misses a lot of time, you're not going to be happy about it regardless of the reasons. So it's up to you to make sure you keep your ass covered with documentation.
Funny, that. I was in a clinical trial for Remicade too. I remember mum being amused that they were going to be pumping me full of mouse protein. Unfortunately it didn't work for me, but I'm glad it worked well for your nephew. How often does he go for infusions?
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He was going every 3-4 months during the trial, which is when he learned to put the tube down his throat-the Remicade was part of a whole cycle of treatment, including the liquid meds/nourishment. I don't know if he's still doing any of it-that was two years ago(long story, but since his recent marriage, he's basically disowned us all, thanks to his blushing bridezilla)