Quote:
|
Originally Posted by Cyborg Ninja
Eh, Martian, you missed the first disease on my list apparently. I guess because you've never heard of it. And I only included myopia because I got yelled at by a doctor for not telling her.  / I wouldn't have included anything beyond the top three because I don't consider them to be important, but other people always list them.
Ngdawg, my Crohn's is usually under control but I had a flare recently and a lot of obstructions. I probably should've gone to the hospital but I hate going. You're right, my stricture is caused by the Crohn's. I didn't get diagnosed until I got appendicitis and by then it was pretty bad. It's not that I was misdiagnosed or anything, I just never mentioned any bowel/digestive problems with my doctors. I hope your nephew gets better. I don't use steroids often because of what happened to your nephew -- they are difficult to wean off of and cause osteoprosis with long-term use. It's risky in someone as young as your nephew. Some doctors don't realize that.
Seretogis, I don't know why you're assuming I only see general practitioners. That's pretty absurd so I don't know what made you think that. I have a GP, neurologist, neurosurgeon, general surgeon, GI, endocrinologist, pain management doctor, etc.
A lot of replies... while I'm certainly not a constant pity-party, I have my moments. Especially when I get sick, have a flare of whatever, and can't function. My work and school place are not understanding. |
Nephew will probably have to have a resection of his large intestine at some point, but, at 24, he's coping pretty well. He was put on a Remicade trial that did wonders and learned how to put a tube down his own gullet into his stomach to feed himself medicated liquid nourishment once or twice a year.
It is unfortunate that workplaces are not tolerant of those that are not 'perfect'. When I had pneumonia and was first on sick leave for two weeks then limited part time for another 6, my boss, a school principal, didn't like it at all, asking when did I think I was going back full time. Huh? He had the report from the doctors. Same with my infertility surgeries(3) and constant stopovers at the doctors(different job)-my 'need' to be late or absent was questioned.
By the way, I wouldn't call Myopia something major-I've been nearsighted all my life, damn near blind, as is my son now. I liken it to my acne and crooked teeth-no big thang, certainly not life-altering or life-threatening. But I can't wear contacts because of severe dry-eye and allergies. I can relate to digestive issues, though...IBS, lactose intolerance, hiatal hernia, a wonderfully named malady called the 'Dumping Syndrome', GERD and/or reflux disease....all nuisances more than anything. I consider myself pretty healthy otherwise.