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One option (legal in the UK, but I'm not sure in the US) would be to use IVF to be certain of having a girl.
You could also (depending on your own morality surrounding therapeutic terminations) conceive naturally and terminate any male embryo.
I realise that these options may seem like eugenics, and they have a morality of their own to cosider, but they would give you the option of raising a child that cannot have the disease herself and only has a 25% chance of being a carrier (needing your mother to have givn you a Xx genotype and you to have given your daughter an Xx phenotype).
At the very worst, this daughter would harbour a 1/16 chance of having a son with HED, or a 1/8 chance of having a daughter Xx, and at best in 16 year's time (or so) when she's ready to breed, there may be a reliable test or even therapy.
It's a shitty choice, but there are ways to make it better I guess.
One personal observation - you have posted sevral times that you are not sure about wanting to have kids - I'd vnture to suggest that you DO want them, but are frightened of the consequences - and I totally respect that. Where there more people as concerned for their potential ofspring as you clearly are the world would undoubtedly be a better place.
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Overhead, the Albatross hangs motionless upon the air,
And deep beneath the rolling waves,
In labyrinths of Coral Caves,
The Echo of a distant time
Comes willowing across the sand;
And everthing is Green and Submarine
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