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Colitis...any sufferers who can offer advice?
So, I have had ulcerative colitis which is an Inflammatory Bowel Disease (and not irritable bowel sindrome) since I was 17 and I'm so fed up of it. Sadly it is chronic, and every two years or so it flares up. I must have had it since I was 14 but was too embarrassed until I was 17 to tell anyone (because then I began passing blood and thought, ok something IS definitely wrong here).
I have no patience with this disease. It is semi-hereditary, semi-nervous system related, and it seems to have a mind of it's own. It doesn't seem to be certain foods that bring it on for me but rather emotional upsets that make it worse, and I just wish I knew what I could do to stop it messing with my life all the time. I can offer more details on all this if some other sufferers want to share with me their wisdom.
How do you live with this disease? It really makes life hard sometimes, from having to have a toilet close by at most times, to worrying about foods (nut then it seems to make no difference what I do), to feeling awful, to being anaemic, to affecting other parts of my health, to affecting my appearance drastically (when I have to take cortizone)......the list goes on. Help, anyone?
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Whether we write or speak or do but look
We are ever unapparent. What we are
Cannot be transfused into word or book.
Our soul from us is infinitely far.
However much we give our thoughts the will
To be our soul and gesture it abroad,
Our hearts are incommunicable still.
In what we show ourselves we are ignored.
The abyss from soul to soul cannot be bridged
By any skill of thought or trick of seeming.
Unto our very selves we are abridged
When we would utter to our thought our being.
We are our dreams of ourselves, souls by gleams,
And each to each other dreams of others' dreams.
Fernando Pessoa, 1918
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