Someone stole my thunder when they recommended that you talk to your school. They can often point you to a person or office within the school that might be able to help.
I believe that my school had student insurance as well. I was looking it up just a minute ago, and the premium for the year is $1,257. It isn't the greatest plan - maxes out at $25,000 in covered expenses, but pre-existing conditions are covered. Maybe your school has something similar? Still seems to expensive for what you earn in a year.
I have no real experience in Medicaid/Medicare qualifications, although it is my understanding that borderline cases are often automatically denied, forcing people to demand a hearing, hire a lawyer, etc., before they are allowed coverage. Maybe someone could point you in the direction of a law firm that handles these types of cases?
On a personal note, my grandfather died of sarcoidosis, and you have my sympathy for the pain you have/are experiencing. I assume you are on Prednisone? Maybe the docs have cooked up something better since my grandfather passed?
To address the "topic" of the post, my father is a doctor, and he believes that there is a need for universal coverage. I believe it too, but I have no idea which method/proposal is going to be best for us, or how we can overcome the industry lobby to get it done! I think it is obvious, however, that such a program will have to be paired with reforms that address the litigious nature of American society as well.
Finally, I have to agree with some on the fact that this post - as is - might have been better located in Tilted Living. Not taking a swipe here, although it may seem that way. I just felt as I read through the posts that this was different than our "normal" discussions here. Maybe its just the more personal nature of the post?
In any case, best of luck in finding a solution.
(most appropriate emoticon I could find!)