I think she'd been through some 14 operations already, up to 30 more in her lifetime. Frankly, I wouldn't know what to do myself. But, if detected during early pregnancy, my wife and I both feel it would be better to terminate.
I know this is going to lit some fuses on anti-abortion/pro-life supporters on this forum. Just my personal opinion. Her case is just so severe, I honestly don't think more surgeries can make her anywhere close to looking normal. She is still little, once she gets to 4 or 5 years and older, she will look in the mirror and other kids and that's going to take toll on her young, innocent mind. This is a tough one.
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