My wife and I watched a program on TV the other day: Girl Born Without A Face - Story of Juliana Wetmore.
We were both shocked as soon as we tuned to the channel, it's can be quite graphic for some. After watching it we were both glad that our two boys were born without any birth defect.
I did some research on the story and articles on Treacher Collins Syndrome. I can only express my sympathy for all the families with loved ones born with such defect.
Many forum have discussions on the Juliana Wetmore, it often leads to the debate of whether the little should be kept alive in this particular case.
"Viewer Discretion Advised"
http://www.five.tv/home/frameset/?content=11738777&
It take a lot of love and courage raising a young child like Juliana. How would you deal with the issues and uncertainties?