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She's back on the oscillator. They decided to stop fussing with and manipulating the settings on the conventional ventilator and reverted to the noisy old oscillator.
This is a major set back. Her tiny little lungs are really struggling. A bronchial spasm here, an upper right lobe collapse there, a brady cardia every once in a while...these things are really taking their toll. She has also been diagnosed with a pulmanary stenosis, which will probably require heart surgery. This is apparently unrelated to her current lung predicament though. Apparently not definatively.
A cat scan on her lungs will be done to confirm.
Her last cat scan was on her brain after they saw 'abnormal spikes' on an EEG, and suspected she had possibly suffered a stroke. This turned out not to be the case, and the spikes were identified as irritation only. Development and growth of the cerebellum.
The pulmonary artery exchanges blood between the lungs and the heart. The stenosis indicates that the valve is too small to efficiently do so. Ballon valvuloplasty is the indicated surgery.
She is responding well to the change and seems much more peaceful and happy. Of course this is likely more from the return of a fentynl drip sedation.
Either way her Oxygen saturations, heart rate, and blood gases have since stabilized. This is a good thing.
Man is this a roller coaster ride.
Of course were still rooting for you sweet heart, and with you in spirit every step of the way.
Continued thanks for everyone's encouraging responses, prayers, and thoughts.
best,
-bear
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It's alot easier to ask for forgiveness then it is to ask for permission.
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