Wow, I'm not alone! I have never posted to a forum before, so I hope I'm doing this right.
I have been experiencing much of same things for ~2 1/2 years now. My husband and I have been married for 4 1/2 years and together for 10. Initially I was seen by my Gyn and she was convinced that it was Herpes and that it is not uncommon for HSV1(oral herpes) to migrate to the genital region. However, I have had multiple recurrences despite high dose valtrex(antiviral treatment) for a year and a half!! I have recently been referred to an infection specialist who is not convinced that it is herpes and I'm so confused.
Our sex life is very different--I always had a great appetite for sex and now am just very apprehensive. I have the tears/lesions in the same region most of you mention: the lower region just outside of the vaginal opening. We have used lubrication, antiviral meds, neosporin, and most recently condoms.
What's interesting is that this began one year after I stopped taking birth control pills and at the very time we began to start a family. Sadly we have not become pregnant and have also seen a fertility specialist during this time--also no information, just unexplained infertility. I'm sure a big part of the infertility is the inability to have sex when we want/need to!!
I have never had problems with yeast infections, but I will try the over the counter med because I'm really willing to try anything at this point. All of the STD testing is negative as well!!
Thank you all for your input as I now don't feel so isolated. My husband and the doctors are the only ones I discuss this with and I have been a bit of a mess dealing with it all--and still unsure if it is herpes or not!!!