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Not to threadjack, but my three month-old son Evan was born with a birth defect called Moebius Syndrome. Basically his cranio-facial nerves are affected such that he will never be able to smile, make much of a facial expression, or move his eyes from side to side. Because of this - and other problems he's had since birth - he's been in Children's Hospital for more time than he's been home. Admittedly, his case is MUCH less severe than Juliana's....
Until you go through it, it's hard to imagine how you'd feel learning these types of things about your child. It's because I HAVE been through it that I understand how JinnKai feels. There is a real rollercoaster of emotions you go through - and probably will continue to go through for the rest of your life. Some days I feel VERY loving and doting towards him; some days I am much more detached.
I only hope that I can impart a sense of humor and a well-placed sense of self-confidence to Evan so that he can deal with the teasing & curiosity that's sure to come from his peers.
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A government big enough to give you everything you want is big enough to take from you everything you have.
-Gerald R. Ford
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